6 March 2014

Living With Lupus But Still Blogging And Fabulous

Hey guys I hope March is treating every on well
Those that have been paying attention to my Instagram and twitter may have noticed some changes in my posts so I
thought I should explain it.
You may have noticed my food diary
 and my work out posts 
and also many of my hospitals visits-
I have never said this on my blog but some have figured out that I am a Lupus suffer for the past year have been dealing with a flare which is the reason for the hospital visits and also the reason that I have not been doing outfit of the day posts (Sorry guys the steroids have made me fat and I haven’t felt like taking pictures).

What is Lupus?
There are two main types of Lupus

Systemic lupus
Is a chronic and presently-incurable illness of the immune system, a condition in which the body's defence mechanism begins to attack itself through an excess of antibodies in the blood stream causing inflammation and damage in the joints, muscles and other organs.
The name systemic lupus implies that almost any organ or system within the body might be affected and lupus is perhaps the classical multi-symptom illness, deserving of far greater priority and investigation by the medical community.

Discoid lupus
Is a condition of the skin alone, and in a very few patients can develop into systemic lupus.
Lupus may be triggered by various means and can present in a bewildering number of ways, even to the extent of mimicking other diseases such as rheumatoid arthritis or multiple sclerosis.
The causes of lupus is not positively known though research has provided evidence implicating heredity, hormones and infections including viruses.
Some 50,000 may have lupus in the UK and 90% of sufferers are female, mainly between the ages of 15 and 55.
With its many symptoms, lupus can often be overlooked by a GP or consultant which may delay final diagnosis and a vital start to necessary treatment which can contain the disease and hopefully limit potential damage to the kidneys, heart, lungs or brain. Those diagnosed usually remain in medical care and receive ongoing treatment. Many symptoms will have less impact but there may be side effects.
Lupus can adversely affect the lives of sufferers and their families, and influence relationships with friends and business colleagues.

What are the symptoms of Lupus
Joint/muscle aches and pains
Permanent rash over cheeks
Extreme fatigue and weakness
Increased risk of miscarriage
Rashes from sunlight/UV light
Flu-like symptoms and/or night sweats
Weight gain or loss
Inflammation of the tissues covering internal organs with associated chest and/or abdominal pain
Seizures, mental illness or other cerebral problems
Headaches, migraine
Kidney problems
Oral/nasal ulcers
Hair loss
Depression
Haematological disorders including anaemia
Swollen glands
Poor blood circulation causing the tips of fingers and toes to turn white then blue on exposure to cold (Raynauds)
A person with lupus may have four or five symptoms, where some of these might recede and/or others develop.
Health Online also have a great diagram that demonstrates the effects Lupus Has On The Body

For more information about Lupus please check out Lupus UK

How does Lupus effect me?

Even though I was diagnosed with Lupus some time ago and i have been having a flare for nearly a year its hard to say exactly what my symptoms are because they change, 
I can honestly say no two day are the same for me, 
The most consistent symptoms has been 
Fatigue 
(However while i have been on Prenilsone I have had insomnia)
I would literally come home from work get ready for bed and go to sleep yet still wake up late for work the following day

Joint pains

 mostly in my hands, arms legs but I'm sure if pretty much had it in most of my joints by now i find that a hot bath helps with the swelling as dose good old ibuprofen 
I wont go through the long list of all my symptoms other wise this would be a long ass post lol!
 but I'm happy for people to email me at: wotshernameagain@gmail.com  if that have any questions about the above list of symptoms or just want some advise 
(I am not a doctor but I will try to help anyway I can)
Before I was diagnosed with Lupus I was naturally very slim and toned so I didn't think about the kind of foods that I ate or put much effort in to exercising then Steroids got involved and I am now having to consider what I eat and how it benefits my body and I have to say I am really finding it very interesting.
The girl that never ate ANY fruit or veg is now regularly getting her 5 a day and has discovered home made smoothies yum
One thing I must say I  am proud that I have managed to keep with my Wots Her Name Again Blog because honestly it has sometimes been my only motivation to get myself out of bed.
What can I say I do it because I love it and I hope you guys enjoy reading it bad grammar and all lol!

I am considering starting a Wots Her Name Again LUPUS BLOG which details some of the things I go through as a Lupus suffer and how I overcome them also so perhaps that will come soon.

As my health improves I hope to be come up with interesting posts more often so in till then thanks for reading my blog



Do you think I should write a blog about Lupus?
Share:

No comments

© Wots her name again? | All rights reserved.
Blog Design Handcrafted by pipdig